X-Linked Hypophosphatemia (XLH) affects 1 in 20,000 people.
The key characteristic of XLH is a low level of phosphorus in the blood, called hypophosphatemia. When a person is affected by XLH, their kidneys do not properly handle Vitamin D and phosphorus. This causes a variety of symptoms and disorders that usually affect bones and teeth.
A passion for creating spaces
Our comprehensive suite of professional services caters to a diverse clientele, ranging from homeowners to commercial developers.
Doctor Database
This tool will help you find a provider that is knowledgeable about XLH.
Transition Toolkit
Your guide to preparing for adult care, strengthening self-management skills, understanding disease progression, and planning for work, relationships, and long-term support with X-linked hypophosphatemia.
Community Guidebook
Created by Kyowa Kirin and the XLH Network for XLHers and their families, the XLH Community Guidebook provides education and tips to help you thrive.
Our Stories
Read stories from people with XLH.
Newsletters
Read about XLH Camp, XLH Day
Events
The XLH Network helps bring people together.